Documentation Error in the Patient Accessible Electronic Health Record (DE-PAEHR) - utilizing patient agency to close the feedback loop on care

“To err is human”The purpose of this project is to investigate how patient accessible electronic health records (PAEHRs) and patient portals can be optimally used to close the feedback loop on care, to identify documentation errors (including omissions, and inaccuracies) in records that may lead to medical error and patient harm.

We have the following three aims:AIM 1: The Past of Patient Input: To analyse how a patient portal feedback function was used by Swedish patients to report documentation errors between 2013-2021.

Collaboration with Inera will give us access to usage data as well as actual patient notes for content analysis.AIM 2: The Present of Patient Input: To explore Swedish patients’ and healthcare professionals’ (HCPs) views on and preferences regarding patient input about identified errors into the record, through a national survey on the 1177.se patient portal.

AIM 3: The Future Potential of Patient input: To understand how patient portals might be optimally adapted as a tool for safe and efficient electronic triage for identifying and correcting medical record errors.

With this knowledge of past and previous patient feedback, we are better equipped to initiate a novel framework for how patient portals might be optimised to promote patients as collaborators in their care.

A Delphi study is planned to reach this aim, combining focus group sessions with several rounds of questionnaire with experts from different stakeholder gropus.