Journalen and friends - celebrating 10 years together!

Journalen 10 år!

November 9-10, 2022 i Uppsala2022 marks the 10-year anniversary of Region Uppsala giving patients online access to their electronic health records (EHR) for the first time.

Since then, a lot has happened in Sweden, and today all citizens have direct online access to their EHR through the e-health service "Journalen" on 1177.se.

Swedish researchers have followed the implementation since the start, not the least through the DOME consortium (https://domeconsortium.org/).

The shift towards giving patients online access to their EHR is not exclusive to Sweden, but happing throughout the world.

Researchers from the DOME-consortium participate in the nordic research collaboration NORDeHEALTH with colleagues from Norge, Finland, Estonia and the USA (Maria Hägglund, Uppsala Universitet, PI).

In the US, a new legislation came into force in April 2021 where patients rigth to access their electronic health records is strengthened.

The EU now moves in a similar direction with the proposal for a European Health Data Space (EHDS), where all member states are required to ensure their citizens have online access to their EHR no later than 2030.

Patients online access to their EHRs is therefore highly relevant, and we would like to take the opportunity to invite international researchers to Uppsala to share experiences of the implemenation and effects of patients online access to records throughout the world. We will organize a 2-day event with invited speakers from both the US and Europe.

The conference will have a scientific focus, but will be open to the public. To ensure that everyone who wants to attend can do so, we also wish to livestream the conference onlien.