Promoting active ageing and participation using technology among older adults and people with Parkinson´s disease - patient, partner and health care provider perspectives

Older people with Parkinson’s disease (PD) are one of the frailest groups in society, as debilitating symptoms place them at high risk for physical inactivity, social withdrawal and reduced quality of life.

PD symptoms also lead to emotional and communicative changes which can severely affect social functioning and result in loneliness and stigmatization.

The proposal outlines five studies which ultimately aim to increase the accessibility and success of implementing evidence-based welfare technology to support active and dignified ageing with PD, and also older adults requiring support for chronic disease.

Research goals are:To investigate the efficacy of eHealth delivered motor-cognitive home training with regards to functional capacity, motor-cognitive ability, and physical activity behaviour, by performing a randomised controlled trial.To investigate how the use of novel wearable technologies can enhance the assessment of motor-cognitive performance in PD.

To investigate patterns of participation in places for activities outside of the home among people with PD, and to explore how use of eHealth and other factors are associated with these patterns.To explore and describe perceptions of carers to people with PD regarding the potential for eHealth technology to support everyday life and participation.To investigate health care professional’s perspectives on determinant factors for the implementation of welfare technology for the care older adults with chronic diseaseOur methods will span a variety of designs and methods - a randomised control trial (RCT), cross-sectional observational studies and qualitative data collection.

We will also investigate perceptions of welfare technology from multiple perspectives, including carers to people with PD and a wide range of health care personnel.

Findings from these studies will have direct relevance for older people living with chronic and progressive disease, their relatives or carers and for the future implementers of welfare technology- health care providers specialised in the care of older adults.

The project group is multi-professional and incorporates physiotherapists, a Neurologist MD, occupational therapists and neuropsychologists.

The planned studied are in conjuntion with clinical Geriatric hospital, which ensures timely implementation of findings.

Studies 1 (RCT) and 2 (cross-ectional) are underway (commenced Oct 2022), all remaining studies studies are planned to be completed by summer 2026.