Understanding Patient Data: A new phase - transformation and innovation in the use of health data

The NHS Confederation is applying to host a new phase of Understanding Patient Data (UPD) which will support conversations with the public, patients and healthcare professionals on transformation and innovation in the use of health data.

We aim to make the way patient data is used more visible, understandable, and trustworthy by working with patient groups, charities, NHS organisations and policymakers to: - bring transparency, accountability and public involvement to the way patient data is used - improve the use of patient data for research The new phase will be based around four work programmes: health data policy, data infrastructure transformation, population health and securing the long-term sustainability of the UPD initiative.

The key deliverables will be to: - Develop the health data community - Commission attitudes research to understand people’s views, expectations, and concerns about data (re)use. - Translate attitudes and engagement research into insights for policy and practice. - Provide advice and commentary to those seeking to understand the key issues about data. - Promote existing resources and produce engaging, accessible resources and guidance on how to talk about health data, freely available. - Secure funding to sustain UDP beyond its 2-year funding cycle.

The new phase will build on and advance existing UPD work.